PrettyIll.com

Surviving and Thriving with Chronic Illness

Your Stories


Zoey’s Story

“"I've been wanting to write or call you for some time now, to share with you what you did for me almost 5 yrs ago. I had been left to…”

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My story

“While I am still very ill, Dr. Diana has made my life much more manageable and has given me invaluable counsel and suggested next steps. She has been reliable, ever-present…”

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Melanie’s Story

“Thank you again Diana. I will be forever grateful to you for the years of research and hard work you put into your own health and your entire family as…”

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Jesse’s story

“In October of 2012, I found myself in an unimaginable place. Basically bedridden, falling down almost whenever I walked, in constant pain, out of work and suffering in countless other…”

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What others are saying

“Dr. Diana, I wanted to start by thanking you for all the information you provided me with. You have given me renewed hope and optimism that we will get to the bottom of this when all the other doctors have left me feeling lost and hopeless. You’re doing an amazing job with all the research you’ve conducted and I know you’ll do many more good things in the future. Thanks!”

-- Nicole

“Hi Dr. Diana, Thank you so much for taking the time to speak with me and for being so generous! I requested the half hour call because that’s all I could afford…so I really appreciate the extra time you put in. Thank you, thank you! I really found your consultation practical and useful, especially since there are accessible over-the-counter drugs to help with symptoms, plus you’re so kind and reassuring. I cannot tell you how much I appreciate the countless hours of work you’ve put into helping so many people. I also really appreciate your openness in sharing your and your children’s experiences. Medical information is very private. I think your openness shows a lot of confidence and bravery.”

-- Sincerely,
Robynne

Iris got into a big financial pickle with her medical bills. We were able to work something out, and she learned to be proactive in her medical care.

“Thank you so much for returning my email, I honestly didn't quite expect it. Thank you so much for the advice, all of the things you recommended. Luckily, I have this great advice from you and the District Manager will help me stay in the company with an administrative position until I can sort out my bills. Thank you again for all your help and encouragement in being proactive, it really is so important. I truly appreciate your helping me and that's great that you'll be helping others; I definitely know that you would be so wonderful as you've been with me. Thank you very much again for replying to me, it really means so much. You definitely have my blessing and thank you so much again,”

-- Iris A.

“I'd say that many of our symptoms have been GREATLY diminished by applying The Driscoll Theory. I feel that we have a handle on sooo many symptoms that will likely keep improving over time as they have been. Fatigue by itself is soooo much better handled when it isn't accompanied by nausea, dizziness, headache and full body pain and muscle spasms. I feel much like I've won the lottery! Thank you Dr. Driscoll! I cannot thank you enough! We are sooo much better for your theory!”

-- Deb Townley

“Yup. Dr. Diana is awesome. I credit her with, if not actually saving my daughter’s life, at least returning her to life. It was nothing short of a miracle for us. Glad you had a similar experience – thanks for sharing it here. (I share my daughter’s journey on my blog Our Life With Ehlers Danlos Syndrome and I have written extensively about The Driscoll Theory).”

-- Beth

“I wish to thank you from the bottom of my heart, Diana, for all the hope you bring to so many. I wish you “All the Best” in your endeavors to find solutions, to help us recover from this horrific condition. ”

-- Love and Best Wishes,
Barbara

“While I am still very ill, Dr. Diana has made my life much more manageable and has given me invaluable counsel and suggested next steps. She has been reliable, ever-present and consistent. She is a dedicated professional and has provided several important health recommendations to me, which, in turn, has helped me to get answers to many questions, and improve the quality of my life. Her guidance covers a broad range of areas from simply listening and understanding, helping to manage symptoms, medications, medical advice, knowledge of procedures, tests, doctors, references, and the list goes on. She has become a very important part of my support system. And, she delivers all this help with a smile and a sense of humor... It's extremely comforting to know that Dr. Diana is there for me to simply listen and offer a lending hand any time I am in need. Dr. Diana is one in a million and I thank my lucky stars that I was fortunate enough to find her while simply searching the Internet.”

-- Christina H.

From Dr. Diana: Thanks so much for sharing your story, Jesse, and I’m delighted to hear you were able to return to work! We are working hard to help patients find the cause of their "mast cell activation", so that they can return to health. Hang in, Jesse and thanks for sharing!

“In October of 2012, I found myself in an unimaginable place. Basically bedridden, falling down almost whenever I walked, in constant pain, out of work and suffering in countless other ways. Although I had managed after years of struggle to receive a POTS diagnosis, none of the "traditional" POTS treatments were working for me; in fact, the beta blockers and many of the recommended salt-rich foods were making me sicker and sicker. The long-term disability insurance that I had earned at my job as an attorney cut me off before the policy even began to pay out, as my illness did not fit into one of their neatly defined boxes. I had no money, no family upon which I could rely and the relationship with my very supportive boyfriend was falling apart.

Up until that point, while I had researched POTS at length, I was discouraged by those around me to dig too deeply into the subject (it was depressing, my prognosis was bleak, etc.). With truly nothing left to lose, I threw myself into online research. By chance, I happened upon a comment in a support group that linked to Dr. Driscoll's theory. As I read the theory, my heart sank. I didn’t want what I was reading to be true. Although I knew I had POTS, and suspected Ehlers-Danlos Syndrome and mast cell activation disorder, I didn’t know what having that trifecta of ailments even meant. Excess water in my brain was a terrifying proposition. Still, I couldn’t deny how true Dr. Driscoll’s words rang.

I am very lucky that my cardiologist was open to exploring the treatment recommended by Dr. Driscoll. I began on the Diamox. The first morning I woke up after taking the pill, I could move my head again freely in a way I hadn’t been able to do for years. I was blown away. The day after that, I was able to stand the whole day without falling down and cook Thanksgiving dinner! It felt like a miracle. The Diamox wasn’t without its issues—as I wasn’t yet managing my suspected mast cell condition with anything beyond Tagamet and Zyrtec, the Diamox triggered mast cell release, resulting in excruciating heartburn, flushing and other unpleasantries. Once I started on the sodium cromolyn and my own low histamine diet, however, these issues began to stabilize.

I continued to improve dramatically. I started to understand how the various aspects of the theory worked together. Based on Dr. Driscoll’s theory, I sought and received a diagnosis for my Ehlers-Danlos Syndrome. As I followed Dr. Driscoll’s advice, days would pass where I could walk without incident (And see! And breathe! And sleep!). While I was still learning to manage the mast cell condition, my life began to feel manageable. By February of 2013, I was looking for work again. In April, I began working again full-time as a lawyer.

It’s now been over two years since I first discovered Dr. Driscoll’s work. I’m still working full-time and now managing a busy social life (including planning a wedding!). My personal relationships have been restored. Although my EDS and mast cell condition will always need to be managed, I have the tools to do so. I take every opportunity I can to share these tools with others. I am so grateful for Dr. Driscoll’s work—I truly don’t know where I would be if it weren’t for her. She’s given me my life back. I await her continued research on this subject with tremendous hope.”

-- Jesse

“I have been very ill for over two and half years now. While I was diagnosed early on with Autonomic Dysfunction, I continued to see tons of specialists around the country trying to get fully diagnosed as I knew that Autonomic Dysfunction, while being very disabling and affecting several systems in my body, was not the only syndrome that could explain all of my signs and symptoms. About a year ago I discovered Dr. Diana Driscoll. For the first time in almost three years, I finally felt like I had someone who could personally relate to what I was going through, as Diana herself, not only being a very caring, compassionate and an intelligent Doctor, is also a patient dealing with many of the same health issues I deal with day in and day out. She has carefully listened and thoughtfully responds to each of my questions and concerns over the last year and has been instrumental in supporting me and providing timely guidance. “I have been very ill for over two and half years now. While I was diagnosed early on with Autonomic Dysfunction, I continued to see tons of specialists around the country trying to get fully diagnosed as I knew that Autonomic Dysfunction, while being very disabling and affecting several systems in my body, was not the only syndrome that could explain all of my signs and symptoms. About a year ago I discovered Dr. Diana Driscoll. For the first time in almost three years, I finally felt like I had someone who could personally relate to what I was going through, as Diana herself, not only being a very caring, compassionate and an intelligent Doctor, is also a patient dealing with many of the same health issues I deal with day in and day out. She has carefully listened and thoughtfully responds to each of my questions and Dr. Diana is a dedicated professional and has provided several important health recommendations to me, which, in turn, has helped me to get answers to many questions, and improve the quality of my life. And she delivers all this help with a smile and a sense of humor... Dr. Diana is one in a million and I thank my lucky stars that I was fortunate enough to find her while simply searching the Internet.”

-- Christina H.

“Dr Diana has opened up a whole new world of science and set me on a path of discovery to a point where everything finally made sense.”

-- Samantha

“What would my daughter’s life be like if God hadn’t led us to Dr. Diana Driscoll? We are so thankful that she is willing to share her journey with EDS, because no one is as credible as someone LIVING this disease every day. Not only is Diana Brilliant in research and discovering practical ways to help ease the symptoms, she also understands the pain of watching your children suffer. We thank God every day for this wonderful doctor who gave our daughter hope on this crazy journey with EDS.”

-- Debby V.

“Dr. Diana has been a lifesaver for me as well. I have learned so much from her and from her videos. I have even shown some of her videos to some of my doctors and always provide them with a link to watch something that is going on with me. She is helping me figure out so many things and the information makes so much sense when she explains it. I know it really bites that she has to be sick like the rest of us, however, I am very thankful that she is not wasting her illness but rather she is using it to make a huge difference in the world!! I can’t wait to see what will happen next with the many things she is helping me with.”

-- A. Hosp

“What I do know is this: The Driscoll Theory is a good thing, arguably the best thing to happen to the EDS community in a very long time – maybe ever! It offers real relief via a cheap medication that is already well tested. It offers a chance to avoid life changing surgery. It offers hope in treating the some of the most difficult aspects of EDS. I, personally, am committed to spreading the word about this theory. Of course, to us, it is not a theory – it has been proven as fact. As time goes on, I believe it will become part of the standard of care for EDS patients. And it will relieve untold suffering. ”

-- Beth

“Dr. Diana, You have no clue how much you are an asset to me and I’m sure to so many more out there.... and in that, there can never be enough 'thank you's' to you smile

-- smile Big hugs!!!
Tennille

“Thank you again Diana. I will be forever grateful to you for the years of research and hard work you put into your own health and your entire family as well. You were so kind to send me a copy of your book The Driscoll Theory we explain last summer when the food cause such systematic Mast Cell Activation Syndrome, but of course I was too out of my ever-flipping mind to sit and read it but I am ever grateful for your kindness and generosity. I surely never would have survived these past seven years if I did not have Dr. Diana Driscoll right there with me in spirit this entire time sharing her incredible amazing mind and knowledge with us. It would be my life's dream to meet Dr. Diana Driscoll in person and give her a huge hug and thank you for the hard work and dedication that she has given that literally pulled me through this past 7 years by my bootstraps when I could not do it myself. Big zebra hugs to you all and especially Dr. Diana Driscoll with her hard work and suffering right along with us, you have given a contribution to this world that you just can't know the magnitude of and I'll be forever grateful. Thank you again and many blessings.”

-- Melanie Amaro

“Diana Driscoll quite literally lifted us out of the "pit of medical despair". She was, and is, not only brilliant in helping us with diagnosis and treatments, she truly cares about us. She has the gift of Problem-solving when the problems seem unsolvable. We are so grateful to have someone like her in our corner, helping us solve the mysteries of Ehlers-Danlos and all that goes with it. She has a unique perspective on the symptoms because she lives them every day. As our daughter would say, ‘You rock, Diana’!”

-- Debby VandenBurg

“You have saved my partners sanity (and life). He has a very long history of CFS and daily headache. The headache escalated recently - 7 months of being in a darkened room unable to cope with anything. This on top of severe Chronic Fatigue Syndrome/ME. I lucked onto your website -- I thank the gods for utube! Long story short. After 7 months of the hell headache and pointless doctors visits and drugs later - Diamox worked within an hour!!! He and I cannot believe it. You are our angel. He was just about to leave the planet - it's been so wretched. His dr was willing to try anything.”

-- Love, Jill and Al

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

“Dr. Diana's pioneering research has changed my life for the better. I'm amazed at both how fast and how much my symptoms improved after following her advice. You are a hero. Your work is fantastic and really shines a flood light of reason and understanding on this strange journey through a dark wilderness that is EDS. Thank you so much.”

-- Kurt
Ostergaard

“Dr. Diana Driscoll’s passion for helping people with Ehlers-Danlos Syndrome by culling known research to find solutions for debilitating symptoms is an asset to our community as the medical research continues.”

-- Shani L. Weber, M.A.

“After combing the Internet for innumerable hours doing medical research, I was also looking for someone with similar symptoms who may be able relate to my condition and potentially provide some help. About a year ago I discovered Dr. Diana Driscoll. I wrote to Dr. Diana as she had a blog online helping others with similar health issues. I was extremely surprised as she promptly responded back to me, willing to listen and help me any way she could. For the first time in almost three years, I finally felt like I had someone who could personally relate to what I was going through, as Diana herself, not only being a very caring, compassionate and an intelligent Doctor, is also a patient dealing with many of the same health issues I deal with day in and day out. She has carefully listened and thoughtfully responds to each of my questions and concerns over the last year and has been instrumental in supporting me and providing timely guidance.”

-- Christina H.

“I was very glad to have found your contact information and ecstatic when I got a reply from you. Finally, a doctor who is knowledgeable medically, but one who also understands what it fees like in the trenches of autonomic dysfunction. The information you provided was very helpful to me and you answered some questions that had been bothering me for a long time. I am truly happy that someone like you had decided to advocate and investigate further into an illness that is so misunderstood. Thank you, thank you!”

-- Margarita I.

“I have been very ill for over two and half years now. While I was diagnosed early on with Autonomic Dysfunction, I continued to see tons of specialists around the country trying to get fully diagnosed as I knew that Autonomic Dysfunction, while being very disabling and affecting several systems in my body, was not the only syndrome that could explain all of my signs and symptoms. After going from Doctor to Doctor, I was referred to a Geneticist who was finally able to diagnose me with Ehlers-Danlos Syndrome over a year and a half after the Autonomic Dysfunction diagnosis. While no one wants to be told they have additional health problems, I was grateful to simply have a diagnosis to explain some of the symptoms that I knew were not simply related to Autonomic Dysfunction alone.”

-- Christina H.