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Surviving and Thriving with Chronic Illness

Aortic root size—our frightening experience!

Marfans! and EDS! and Loeys-Dietz Syndrome! Oh MY! Aortic root size is critical. An example of why we need our own data for this and other testing.
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What do I say to my children’s current doctor to get raw data instead of just records since I do not know what that is or have never heard of it but I think it is a really good idea (Thanks for this idea!) and I really love your voice, sound and inflection, by the way!

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