Join our clinical trial as we look at potential vascular changes in the fundus (back of the eye) in patients with Multiple Sclerosis and/or Ehlers-Danlos Syndrome. Are there signs of CCSVI?
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Join our clinical trial as we look at potential vascular changes in the fundus (back of the eye) in patients with Multiple Sclerosis and/or Ehlers-Danlos Syndrome. Are there signs of CCSVI?
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Dr. Francomano is my doctor, she is amazing. I wish there were more doctors with her compassion. I hope you are getting results from the study. 🙂
How long are you doing this study? I would like to do this study but not able to get to Your area on Saturday. Would it be an issue if we did my test on a Saturday.
Thank you,
Amy Bromley
I think I have these issues with my eyes. I’ve been diagnosised with Ehlers Danlos III and HyperPOTS with possible mast cell activation disorder. Having autoimmune issues too with vitiligo and alopecia. I’ve been checked by two eye docs and they can’t find out what’s wrong with my eyes. But, like you, they feel like they will sometimes pop out of the sockets and they hurt. It also hurts to look up. One eye seems to hurt more than the other, but they both hurt. Also, am real nearsighted. Probably due to the EDS. When a child had to change… Read more »
Hello, I have EDS III. I recently went to the eye doctor for what I thought was an eye infection, which was not , of course. I learned along time ago that nothing is what is seems when you have EDS hahah. The doctor is sending me for a MRI to rule out MS. At 37 I really thought I have been through it all. I have been on disability for over 10 years now because of migrains and of course the wonderful dislocations. Is the vascular changes in the back of my eye something they would have seen at… Read more »
I have eds classical type and an 61 yrs
I have a lot of color seen in the back of my eyes noted at exams
it does not bother me. is this potentially serious
I am new to the website
Wanting to put this out there. I’d read where doctors are reversing MS by clearing excess iron blockages in the brains of MS patients. How is this related to POTS? I am finding this fascinating information. I have had several in the family with various different diagnosis such as MS, some unknown diagnosis unable to get to the bottom of it. And I belief it’s EDS and POTS behind these possibly. I have signs of EDS and now feel I am developing POTS. :-/ Anxious to hear back!
Hi there, any chance you still need participants? I have Eds and am suspecting ms.