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Surviving and Thriving with Chronic Illness

Clinical Trial 2 for EDS

Dr. Diana announces her second clinical trial for EDS patients. This one requires no travel!
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Wow…my daughter is struggling with hypermobility syndrome, she is having genetic testing the beginning of Aug. I am now home educating her as could not get school’s to understand…this was making R much worse she has improved drastically since I have been pacing her.  On taking medical history the doctor that R is under was very interested in my son who has super stretchy skin many learning problems adhd autistic spec and I found your blog about v large head!! I have photos on my kitchen side waiting to go to the next appointment…at the time the doc was monitoring it but decided that as he was reaching his milestones he did not need a MRI done and left it. My question is my son fits the classic EDS but daughter fit the hypermobility EDS can you have different types in one family ?
thank you in advance for your thoughts x

Thanks for the informative and obviously sincere website! I’m sending you a note via email asap-that is, when I’ve had some rest and can harness my intellect to make sense of what I’m experiencing.
Again, THANKS, so much!

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