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Surviving and Thriving with Chronic Illness

Let’s talk about Diamox! updated

Diamox can be used to lower intracranial pressure in folks with IIH and hydrocephalus allowing many to avoid brain shunts (and many patients with EDS can avoid neck fusions and Chiari surgery! The use of Diamox can be tricky -- let's chat about that!
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Dear Dr. Diana,
I just posted and forgot to say that I got a horrendous pressure headache the day a vaccuum cleaner fell on my head from two steps above me on the stairway.  The headache has never gone away.  The MRI was normal and the headache did not stop until that night when I laid down and it was awful.  I have always had EDS and POTS and MCAD….this bash on the head made my MCAD so much worse.  They say that my C1 and C2 are off now.  When I am “worked on” they are just looking for movement.  That does not help my headache.  Please help!

The specialist assignment assistance simply put me on Diamox for a water pill. Has anybody ever taken this and if so did you have any responses to it or did you lose any weight from it?

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