Mast cells and their disorders are a big part of The Driscoll Theory. A must see for those of us with fatigue, dysautonomia, brain fog, pain, personality changes, etc. New diagnostic protocol!
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Mast cells and their disorders are a big part of The Driscoll Theory. A must see for those of us with fatigue, dysautonomia, brain fog, pain, personality changes, etc. New diagnostic protocol!
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
How do they test if you have mast cell involvement in the brain/heart?
Hi Dianna!
I love the new site and thank you for so much time and effort that you have dedicated to this overwhelming condition. My bone biopsy came back negative, but I do respond to the treatment. I usually have an instant red flushing when things are going wrong and with some medications and alcohol. My only concern about the pepcid type medications would be that it inhibits the absorption of nutrients, and as we know, we already battle that. Any thoughts?
Hi I was wondering does mcad lead on to mastocytosis or luekemia? As I am responding well to h1, h2 and nalcrom as a trial from my dr. I have had no tests but I also have eds type3 and dysautonomia. I am quite worried what the progression may be ?
I’m getting a bone marrow test to test for mast cell, the doctor said it
Hurts. How much does it hurt? I’m extremelt sensitive to pain.
Should i do it? What will they do if they do find it? Should i even bother? Thank you cindy
Hi Dr . Just a quick question, who should i see for mast cell
Diease? I’ve been trying for three months to see Dr AKins or
dr Castells but they keep putting me off. Any body else you can think of. I do have pots as well. Thank you. Cindy