Surviving and Thriving with Chronic Illness

Overwhelmed, anyone?

I haven't quite fallen off of the face of the earth, but am certainly overwhelmed! Please forgive my slow responses to so many, as I dig my way through finishing clinical trials, preparing for ISNVD, professional abstracts, finishing Part 2 of The Driscoll Theory (I need to stop adding to it!) and trying to help my kids and I simultaneously. Agh! This too shall pass, my friends

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Part 1 The Driscoll Theory The Cause of POTS in the EDS Patient

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I have been pretty Ill myself for over a year now, after a PDA closure in my heart, symptoms bagan to resurface.  I was diagnosed with POTS in Dec 12.  After waiting for over a month to see a specialist( today 3-1-12), feeling very sick for the last week and half, i went to my docs appointment today and was told that its basically anxiety/ depresion.  What a joke! There are no specialist that I know in Colorado.  I was kind of prepared for this bacause of information forums like this, i have watched every video about POTS/Dysautonomia, and specially your “yeah i feel like that too”. It was such a relief to know that i am not alone in this.  Thank God for doctors like yourself, that are also patients and that can understand and do research and bring awareness for those like me, and my poor husband, that think that are going to crazy, I am very overwelmed.  Im looking to go out of state in search of a specialist and not sure where to go yet.  Any sugestions Dr.? xx

I’ve been dxed at least 4 years now but yesterday the same Doctor, my neurologist, dxed me with Cervicaliga due to MVA in 1991.  He also wrote on my visit summary that I have POTS 195.1, 427.89,  Migraines with auras,  I am scheduled for a skin biopsy today?  He mentioned collegan…what do others think he’s looking for?  Thank you and I must say Dr. Diana’s videos have helped me tremendously.

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