How do you find a doctor to follow this? I got shuffled around from one to the other and each one said they do not handle this. I have given up on finding someone to deal with this.
POTS, NCS, Dysautanomia, possible mild EDS
Wow this is amazing! I was diagnoised with Ehlers Danlos Syndrome 10 years aago. My mom and brother also have it. Sadly we have all suffered terrible with a multitude of issues. Minw mainly Kerataconis which will cause blindness, among other issues. My main concern has been my mom with her heart. This video is so helpful, we are now in the process of trying to find a doctor that can help diagnois Pots or something similar. I am so thankful for Diana, this is a very frustrating disorder, what makes it easier to deal with is having hope, which this site has given me
Comments
How do you find a doctor to follow this? I got shuffled around from one to the other and each one said they do not handle this. I have given up on finding someone to deal with this.
POTS, NCS, Dysautanomia, possible mild EDS
Wow this is amazing! I was diagnoised with Ehlers Danlos Syndrome 10 years aago. My mom and brother also have it. Sadly we have all suffered terrible with a multitude of issues. Minw mainly Kerataconis which will cause blindness, among other issues. My main concern has been my mom with her heart. This video is so helpful, we are now in the process of trying to find a doctor that can help diagnois Pots or something similar. I am so thankful for Diana, this is a very frustrating disorder, what makes it easier to deal with is having hope, which this site has given me