Surviving and Thriving with Chronic Illness

The Driscoll Theory - Layman’s Version Section 1

Dr. Diana discusses hydrocephalus and Ehlers-Danlos in this first section of The Layman's Version of The Driscoll Theory concerning POTS and EDS

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Dr. Diana,
Thank you so much for all the effort you put in to communicating and helping us through your continuing research.  I’m sure your “Driscoll Theory” explained in Layman’s terms will be a benefit to many.  I think it was extremely insightful of you to look for objective symptoms/signs in yourself to lead you to your findging of External Communicating Hydrocephalus being linked to EDS.  It’s great to know that there is someone out there such as yourself who cares enough to try to connect other disorders that can be associated with EDS.  Looking foward to hearing more about your research and what you have learned in connection with EDS to MCAD/Mastocytosis and EDS to CCSVI.

Thank you so much, eternaloptimist for your kind words and encouragement. There is so much more to share, and I can hardly wait to do so! There’s some big news coming up on how our journey (and treatment) overlaps with many of our ‘brothers and sisters’! This is about to get very, very interesting. Please stay tuned as people with your level of optimism (and support, I can’t tell you how much that means to me) will watch medical history unfold… Big hug,

Chelsey, you always amaze me.  I’ve know you since you were very ltltie and know the hardships you and your family have gone through.  Best of luck to you in the remainder of your college days and on to bigger and better things.  You can do it, Girl!!!

I have EDS(hypermobility), POTS & what the neuro doc said was occipital neuralgia (I have pressure all day everyday at the dip where your head meets your neck), I get what feels like an electrical shock type of pain (comes on in an instant) then leads to a “headache”. I also have to be careful of what meds I take due to my platelet dysfunction…my question is, would Diamox be an safe choice? My neuro tried me on Gabapentin but I got extreme chest pain & had to stop.

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