Dr. Diana discusses how mast cell disease affects our conditions, and introduces the new protocol for mast cell diagnosis. If you have POTS or dysautonomia, it’s a MUST SEE.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Dr. Diana discusses how mast cell disease affects our conditions, and introduces the new protocol for mast cell diagnosis. If you have POTS or dysautonomia, it’s a MUST SEE.
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross
Hi Dr. D! It is so funny – I had found this article a couple weeks ago and saved it, but never actually read it. I happened to read it yesterday and got very excited! I commented to my mom about it saying, “I think what it is saying is ‘if it looks like a duck and quacks like a duck, then it is a duck.’ “. Then I get up this morning and find your video where you say the same thing! Anyway, I so appreciate your support in helping my daughter. We started the Zyrtec and Zantac a… Read more »
Hi Beth, Great minds think like ducks, or something like that… ha. I love to hear that Emily is responding so well! If she still has headaches, neckaches (radiating down to her shoulders), please keep working toward a little Diamox (or Neptazane). It may what she needs to help with the rest of the autonomic symptoms… 🙂
And Gastrocrom? I’ll talk about how we get ours at a formulating pharmacy for a fraction of the cost. WHAT a difference that can make, too! (although you have to be a big patient).
Big hug to you both,
🙂 Diana
“… you have to be a BIT patient…”. Ha. Size doesn’t matter! (Don’t you love typos?).
🙂
Dr. Diana, Thanks for explaining so much about MCAD/Mastocytosis and how it can be associated with Ehlers Danlos Syndrome, as well as other conditions. Who would have thought Mast Cells could cause so many problems? Geez…. Very interesting Theory regarding Mast cells hiding out in the Chorid Plexus triggering a sudden increase in CSF. It certainly seems highly plausible. It is very nice to hear about the new protocol for diagnosing MCAD/Mastocytosis. Yes, it seems that if people respond to Mast Cell Treatment, yet still test negative for Tryptase, Methylhistamine, Bone Marrow Biopsy, etc….. that they very well could still… Read more »
Hi Eternaloptimist — You understood about the choroid plexus comment! Good for you! It is amazing what I am learning about that! I had to have a couple of episodes of true shock (VERY low BP and HR simultaneously) just to drive the point home. Yikes. More on that soon. I’m always so grateful to you for your support, my friend. Big hug, Diana
Great Post! Thanks for sharing