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Surviving and Thriving with Chronic Illness

The Layman’s Version, The Driscoll Theory - Section 2 Mast Cells

Dr. Diana discusses how mast cell disease affects our conditions, and introduces the new protocol for mast cell diagnosis. If you have POTS or dysautonomia, it's a MUST SEE.

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Hi Dr. D!
It is so funny - I had found this article a couple weeks ago and saved it, but never actually read it. I happened to read it yesterday and got very excited! I commented to my mom about it saying, “I think what it is saying is ‘if it looks like a duck and quacks like a duck, then it is a
duck.’ “. Then I get up this morning and find your video where you say the same thing!

Anyway, I so appreciate your support in helping my daughter. We started the Zyrtec and Zantac a few days ago and are very encouraged. She is able to eat without pain for the first time in many months. The abdominal pain and itchiness were the first to go. Now the dizziness and blurred vision and many other symptoms are lessening as the days go by. (We are keeping a record so we can take it to the doctor as proof!)

Still working on getting a doc to prescribe the Diamox (I have an appt for a second opinion with a local neurologist) but the mast cell treatment has been so helpful and I just want to thank you for all your work in helping so many people. Have a great day!

Beth (Emily’s mom)

Hi Beth, Great minds think like ducks, or something like that… ha. I love to hear that Emily is responding so well! If she still has headaches, neckaches (radiating down to her shoulders), please keep working toward a little Diamox (or Neptazane). It may what she needs to help with the rest of the autonomic symptoms… smile
And Gastrocrom? I’ll talk about how we get ours at a formulating pharmacy for a fraction of the cost. WHAT a difference that can make, too! (although you have to be a big patient).
Big hug to you both,
smile Diana

“... you have to be a BIT patient…”. Ha. Size doesn’t matter! (Don’t you love typos?).
smile

Dr. Diana,
Thanks for explaining so much about MCAD/Mastocytosis and how it can be associated with Ehlers Danlos Syndrome, as well as other conditions.  Who would have thought Mast Cells could cause so many problems?  Geez….  Very interesting Theory regarding Mast cells hiding out in the Chorid Plexus triggering a sudden increase in CSF.  It certainly seems highly plausible.  It is very nice to hear about the new protocol for diagnosing MCAD/Mastocytosis.  Yes, it seems that if people respond to Mast Cell Treatment, yet still test negative for Tryptase, Methylhistamine, Bone Marrow Biopsy, etc….. that they very well could still have MCAD/Mastocytosis.  If a doctor tells me I tested negative for this condition, therefore, I don’t have it, yet I know for a FACT that a medication I am taking for MCAD/Masto is greatly helping me, do you think I would stop it?  I don’t think so!  Thanks so much for sharing this information with us Dr. D!

Hi Eternaloptimist—- You understood about the choroid plexus comment! Good for you! It is amazing what I am learning about that! I had to have a couple of episodes of true shock (VERY low BP and HR simultaneously) just to drive the point home. Yikes. More on that soon. I’m always so grateful to you for your support, my friend. Big hug, Diana

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