Download NowInstructions and information about signing up for the treatment trial for gastroparesis, chronic constipation, IBS, delayed gastric emptying (etc) as found in dysautonomia in Ehlers-Danlos syndrome, Joint Hypermobility syndrome, POTS, Chronic Fatigue Syndrome (or M.E.) and fibromyalgia. This is a PDF and you will need Adobe Acrobat to see it (free download). … [Read more...] about NOW COMPLETED: Gastroparesis and IBS Treatment Trial Sign Up Begins – Instructions here!
Chronic Fatigue
Gastroparesis and IBS Treatment Trial Sign Up Begins!
If you have Gastroparesis (even if intermittent), delayed gastric emptying, chronic constipation, IBS, episodic diarrhea with constipation AND have dysautonomia and/or EDS and/or Chronic Fatigue Syndrome ("M.E."), it's time to sign up for treatment trials! Instructions attached here! http://bit.ly/13HDhbx … [Read more...] about Gastroparesis and IBS Treatment Trial Sign Up Begins!
Best Spoonie Art Contest!
DEADLINE EXTENDED TO SEPT 30! All "bugs" on forum are now fixed! Yeah! So, if you are a creative spoonie, please join us in our "Best Spoonie Art Contest"! You can enter on the forum at Prettyill.com. In this video, Dr. Diana discusses how this will work. Any and all art, music, writing, etc is acceptable, as long as a spoonie (chronically ill patient) has made it! Deadline is … [Read more...] about Best Spoonie Art Contest!
Should dysautonomia patients get the flu vaccine?
Download NowIt's a tough call for many of us -- should dysautonomia patients get the flu vaccine? We often times will flare with symptoms after the vaccine, but is the flare worse than the flare we'd experience with the flu? It's a decision each one of us grapples with every year! Here's an abstract concerning this tendency to flare. … [Read more...] about Should dysautonomia patients get the flu vaccine?
EDS Hypermobility type may be the same as TNX deficiency?
Download NowMUST READ article explaining how TNX deficiency may account for most of the Hypermobility forms of EDS! Better yet? This deficiency can actually be beneficial to the heart! … [Read more...] about EDS Hypermobility type may be the same as TNX deficiency?