Great blog about POTS, EDS and family...making it all work! … [Read more...] about Potsie Mama
Ehlers-Danlos
Should dysautonomia patients get the flu vaccine?
Download NowIt's a tough call for many of us -- should dysautonomia patients get the flu vaccine? We often times will flare with symptoms after the vaccine, but is the flare worse than the flare we'd experience with the flu? It's a decision each one of us grapples with every year! Here's an abstract concerning this tendency to flare. … [Read more...] about Should dysautonomia patients get the flu vaccine?
New gene found for EDS!
Download NowYet another new gene found for EDS! It's name? B3GALT6 (kinda' catchy!) … [Read more...] about New gene found for EDS!
EDS patients should not have LASIK! Ortho-K is a great option!
EDS patients are not candidates for surgical correction (such as LASIK) for myopia (near-sightedness), astigmatism or hyperopia (far-sightedness). Ortho-K is a great option and can even slow or halt the progression of near-sightedness in children. The patients wear a lens only at night-time and are free of contacts or glasses during the day. Yes, this is my hubby speaking on … [Read more...] about EDS patients should not have LASIK! Ortho-K is a great option!
EDS Hypermobility type may be the same as TNX deficiency?
Download NowMUST READ article explaining how TNX deficiency may account for most of the Hypermobility forms of EDS! Better yet? This deficiency can actually be beneficial to the heart! … [Read more...] about EDS Hypermobility type may be the same as TNX deficiency?