DEADLINE EXTENDED TO SEPT 30! All "bugs" on forum are now fixed! Yeah! So, if you are a creative spoonie, please join us in our "Best Spoonie Art Contest"! You can enter on the forum at Prettyill.com. In this video, Dr. Diana discusses how this will work. Any and all art, music, writing, etc is acceptable, as long as a spoonie (chronically ill patient) has made it! Deadline is … [Read more...] about Best Spoonie Art Contest!
Fibromyalgia
Potsie Mama
Great blog about POTS, EDS and family...making it all work! … [Read more...] about Potsie Mama
Should dysautonomia patients get the flu vaccine?
Download NowIt's a tough call for many of us -- should dysautonomia patients get the flu vaccine? We often times will flare with symptoms after the vaccine, but is the flare worse than the flare we'd experience with the flu? It's a decision each one of us grapples with every year! Here's an abstract concerning this tendency to flare. … [Read more...] about Should dysautonomia patients get the flu vaccine?
New gene found for EDS!
Download NowYet another new gene found for EDS! It's name? B3GALT6 (kinda' catchy!) … [Read more...] about New gene found for EDS!
EDS Hypermobility type may be the same as TNX deficiency?
Download NowMUST READ article explaining how TNX deficiency may account for most of the Hypermobility forms of EDS! Better yet? This deficiency can actually be beneficial to the heart! … [Read more...] about EDS Hypermobility type may be the same as TNX deficiency?