Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing … [Read more...] about Collagen disorders – it may not be Ehlers-Danlos syndrome!
DEADLINE EXTENDED TO SEPT 30! All "bugs" on forum are now fixed! Yeah! So, if you are a creative spoonie, please join us in our "Best Spoonie Art Contest"! You can enter on the forum at Prettyill.com. In this video, Dr. Diana discusses how this will work. Any and all art, music, writing, etc is acceptable, as long as a spoonie (chronically ill patient) has made it! Deadline is … [Read more...] about Best Spoonie Art Contest!
Great blog about POTS, EDS and family...making it all work! … [Read more...] about Potsie Mama
Dealing with a chronic (especially invisible) illness can be more than trying! Need a chuckle? I love this site to share some of our outrageous and silly moments. Enjoy! … [Read more...] about Illness Sucks but I find the Funny!
Download NowAbstract discussing how the diagnosis of EDS is often missed prior to surgery -- complicating the procedure and recovery. Surgeons! You don't want to miss this! … [Read more...] about Surgical Failures — Don't miss EDS!