Dr. Diana discusses a couple of the rarer collagen disorders that may be underdiagnosed. She discusses Stickler syndrome, Marshall syndrome, the eye effects involved and loss of hearing … [Read more...] about Collagen disorders – it may not be Ehlers-Danlos syndrome!
POTS
NOW COMPLETED: Gastroparesis and IBS Treatment Trial Sign Up Begins – Instructions here!
Download NowInstructions and information about signing up for the treatment trial for gastroparesis, chronic constipation, IBS, delayed gastric emptying (etc) as found in dysautonomia in Ehlers-Danlos syndrome, Joint Hypermobility syndrome, POTS, Chronic Fatigue Syndrome (or M.E.) and fibromyalgia. This is a PDF and you will need Adobe Acrobat to see it (free download). … [Read more...] about NOW COMPLETED: Gastroparesis and IBS Treatment Trial Sign Up Begins – Instructions here!
Gastroparesis and IBS Treatment Trial Sign Up Begins!
If you have Gastroparesis (even if intermittent), delayed gastric emptying, chronic constipation, IBS, episodic diarrhea with constipation AND have dysautonomia and/or EDS and/or Chronic Fatigue Syndrome ("M.E."), it's time to sign up for treatment trials! Instructions attached here! http://bit.ly/13HDhbx … [Read more...] about Gastroparesis and IBS Treatment Trial Sign Up Begins!
Best Spoonie Art Contest!
DEADLINE EXTENDED TO SEPT 30! All "bugs" on forum are now fixed! Yeah! So, if you are a creative spoonie, please join us in our "Best Spoonie Art Contest"! You can enter on the forum at Prettyill.com. In this video, Dr. Diana discusses how this will work. Any and all art, music, writing, etc is acceptable, as long as a spoonie (chronically ill patient) has made it! Deadline is … [Read more...] about Best Spoonie Art Contest!
Potsie Mama
Great blog about POTS, EDS and family...making it all work! … [Read more...] about Potsie Mama