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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Table of Contents – Driscoll Theory Newly Revised

DEDICATION4

ACKNOWLEDGEMENTS5

INTRODUCTION9

CHAPTER 111

  • EDS/POTS – A PARADIGM SHIFT11
    • What is Dysautonomia and “POTS”?14
    • Overview of Intracranial Pressure17
      • The Role of High Intracranial Pressure:17
      • The Role of Low Intracranial Pressure:21
    • Diagnosing and Treating Abnormal CSF Flow:22
      • Mast Cells and Inflammation22
      • Vascular Abnormalities23
      • The Vagus Nerve24
      • Patient Position in EDS/POTS27

CHAPTER 230

  • INTRACRANIAL PRESSURE – A CLOSER LOOK30
    • Why so Much Confusion?30
      • CSF Flow33
      • High Intracranial Pressure in Children43
      • Non-Surgical Treatment Options for IIH (or External Communicating Hydrocephalus)48

CHAPTER 351

  • MAST CELLS — AND WHY THEIR CONTROL ISN’T THE COMPLETE ANSWER51
    • Histamine 53
    • Looking Beyond Mast Cells 55

CHAPTER 4 59

  • THE ROLE OF VASCULAR ABNORMALITIES 59
    • Fundus Examination of EDS Patients 59
    • Vagus Nerve Compression by High Venous Pressure 62
    • EDS/POTS and Endovascular Procedures (“CCSVI” Treatment) 72

CHAPTER 5 76

  • NEW THINKING 76
    • Shift in EDS/POTS Treatment 76
    • Dr. Diana’s Top Picks 78
    • New Bugs 84
    • Acquired Collagen Damage 84

CHAPTER 6 86

  • WHAT WENT WRONG WITH EDS/POTS 86
    • Where Have we Failed With EDS/POTS? 86
    • What Can be Done for Patients Suffering Today? 89

CHAPTER 7 92

  • VALIDATING THE PATIENT 92
    • Part 1: Family, Spouses, Doctors and Self 92
    • The Problem of Invalidation 92
    • Strength to Go On 96
    • Part 2:  Tips and Tools For Resiliency 96
    • Tools in the Toolbox 97
    • Hope for the Future/Acceptance 102
    • Suggested Reading 103

CHAPTER 8 105

  • A PHYSICIAN’S PERSONAL PERSPECTIVE 105
    • A Message to EDSers 106
    • A Message to Physicians 106
    • Looking Forward 107

CHAPTER 9 108

  • GLUTEN AND EHLERS-DANLOS SYNDROME 108
    • Navigating The Many Ways Gluten Can Impact Your Health 108
    • Autoimmune reaction to Gluten- Celiac Disease 109
    • Gluten Intolerance 110
    • Wheat Allergy 110
    • Gluten Maldigestion 111
    • Gluten Chemical Reaction 111

CHAPTER 10 113

  • THE PATIENTS SPEAK 113
    • Emily’s Story 113
    • My Story 120
    • A Letter From Asher 123
    • Our Journey to a Diagnosis 124
    • I Have My Life Back 125
    • The Ten Year Headache 126
    • Our Journey for Hope 127
    • My Son’s Journey 128

CHAPTER 11 129

  • DIAMOX PEARLS 129
    • Common Side Effects 129
    • Allergies 130
    • Adverse effects: 130
    • Contraindications: 130
    • Uncommon Contraindications 130
    • Clinical Pearls 131

ADDENDUM 134

  • Our Research and “Invisible Illness” 134
  • Information on Testing and Treatment of EDS/POTS 136

ABOUT THE MEDICAL AUTHORS 137

  • Diana Driscoll, O.D. 137
  • Sharon Meglathery, M.D. 138
  • Christine Doherty, N.D. 139
  • Joao Paulo Ferreira, M.D. 140
  • Ananya De, Ph.D. 141
  • James Pazun, Ph.D. 142

TABLE OF FIGURES 143

REFERENCES 145

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