I think I do have some symptoms of hydrocephalus – I get that terrible headache at the base of my skull that radiates down the shoulders, motion sickness, and ringing in my ears (I also sometimes hear a whooshing sound in my ears when I stand up). I also have visual issues – I have double vision again (I had strabismus surgery about 10 years ago which corrected it until recently) and sometimes my vision seems to blur. I’ve been wondering if these visual symptoms are due to high intracranial pressure or just another symptom of POTS (since sometimes I notice it when I get dizzy).
Opuntia, Can you please fill out a symptoms checklist for me and email it back to me at Clinical_Trials@Prettyill.com? You can find it under “Articles and Handouts” (at front page, look to the right and scroll down. Now click on it and again scroll down until you see Symptoms Checklist for Chronic Fatigue/M.E.. You can fill it out on-line and shoot it back to me, or print it (narrow margin setting), scan and email it back. It should tell me what we need to do. If you need help with being evaluated for hydrocephalus, just holler! I now have a specialist who is working with me on this! Yeah! When you send the checklist back, can you just let me know if you need help? Awesome! 😉