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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Movement Disorders, Shaking, and POTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Movement Disorders, Shaking, and POTS › Reply To: Movement Disorders, Shaking, and POTS

July 12, 2013 at 10:29 pm #3890
Dr. Diana
Keymaster

Hi optunia! Welcome! You sound SO much like me in my first 3 years or so. I had the worst tremor — especially in my right hand, and if you’ve seen my vids, you know I also have the hyperadrenergic form. In this form, our norepi levels can be incredibly high, and this alone can cause a tremor. On the TTT I shook so hard they said it would have been fun to put some bells on me. Ha. I also had a friend who, while we were talking, suddenly jerked his head to the side (and then back). It was NOT a voluntary movement. All of these things went away for me (and my friend) with Diamox and I wonder if you have any symptoms of hydrocephalus? I used to have leg jerks and nearly kicked my hubby out of the bed a few times! 😉 I think my electrolytes were off and it was about then that I started taking magnesium more seriously, and that helped. I’ll be curious to see what others have experienced. 😉

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