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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: retroflexed odontoid

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › retroflexed odontoid › Reply To: retroflexed odontoid

April 24, 2014 at 6:00 pm #4992
decompressed
Participant

Thank you Barbara, I think we were posting at pretty much the same time! 🙂 It seems that my symptoms are worse, to include then pressure at the base of my skull when I tuck my chin. Rotation to the left seems okay, a strain to the right of my neck and pain, but what is most noticeable to me then is it feels like I can feel my heartbeat in my head. I can barely rotate to the the right, but it is much sharper pain.

I understand (and appreciate) your knowledge and research. I have read everything I can get my hands on to try and understand. I need to learn and wrap my head around this, I have pretty bad anxiety so learning about it and feeling like I know enough to ask the right questions and be proactive in my care is important to me. I have contemplated writing to the radiologist and asking them specifically for relevant measurements from both the 2012 and 2014 images. I don’t know what good that would do though, except I’d know.

You’ve had decompression surgery? When was yours? Did you have relief?

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