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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: retroflexed odontoid

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › retroflexed odontoid › Reply To: retroflexed odontoid

April 24, 2014 at 6:29 pm #4994
decompressed
Participant

Thank you! So the grabb oaks measurement that I am doing is actually measuring the movement away from C1 and outside the basion(?), not a “retroflexion” of the odontoid. It is moving toward the spinal column because all the ligaments are not there to support, and not from it being retroflexed?

It’s interesting you mention the collar. I’ve though about going and getting one. My first thought has always been I wish I could hang from my ankles it would make my neck feel so much better! It would kill my head and probably cause one pounder of a headache. I catch myself grabbing my jawbone and pulling my head up to decompress all that is going on in my neck. It helps pain quite a bit. Can’t hold my arms up like that for very long though without them falling asleep. The collar seems to help though you though? I’ve been a little worried about the rigid collar hitting my “soft spot” from decompression. Sometimes when I wear a ball cap or head band I get a fluid collection and a headache.

The NS did order a CINE MRI and a separate study of xrays in flexion and extension after I persisted. I don’t know that the CINE was specifically in flexion though. He’s not done that in the past.

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