The length of time I should have been tilted to the 70 degree angle was 45 mins, I didn’t last much past ten minutes where I became very short of breath, sick and very hot, I felt that I would have passed out or even worse that my heart would stop, they confirmed that they had captured the event but did not say what the event was!
Can I ask another very important question…. do people who have PoTS have abnormal events recorded on ECG’s during the TTT?
Kind regards
Heather UK
Oh, Heather, this just kills me… The TTT really shouldn’t go beyond 10 minutes. By that time, everyone should know if your heart rate went up the requisite 10 bpm’s or not. We do not need to pass out (or have ‘events’ on the ECG) for the diagnosis of POTS. My heart rate was 164 at 10 minutes. It would have killed me to stay on it longer. Many of us “code” on a TTT — enough of us that Dr. McDonnell (heading up the EDS 10 year study on EDS/POTS) won’t even put us on a TTT any more! Yikes. It sounds like they got what they need, Hon, but REALLY?! OMG. Get lots of rest and we’ll look forward to your results! Big hug…