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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Getting doctors to believe in PoTS!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Getting doctors to believe in PoTS! › Reply To: Getting doctors to believe in PoTS!

November 19, 2013 at 3:43 am #4602
Amina
Participant

Heather I’m sorry to hear of your frustration with getting proper care. Just wanted to chime in here and say that I experience some of the same symptoms you describe. I do not have a diagnosis as yet. The symptoms of sweating and shaking are most intense and paired with pressure in my head… (no way i can do a treadmill test!). My medical investigations are looking at a cranial CSF leak. I have family history of connective tissue disorder and thoracic ascending aortic aneurysm (mother and one brother), among other presentations.

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