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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Getting doctors to believe in PoTS!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Getting doctors to believe in PoTS! › Reply To: Getting doctors to believe in PoTS!

November 11, 2013 at 3:23 pm #4583
Heather1603
Participant

Thank you once again for your reply and I agree it is difficult to get to grips with understanding fully (lol as mud)…..

I can confirm that I had my TTT and it was dreadful, I would never have believed it could make you feel so ill or react so badly.

The length of time I should have been tilted to the 70 degree angle was 45 mins, I didn’t last much past ten minutes where I became very short of breath, sick and very hot, I felt that I would have passed out or even worse that my heart would stop, they confirmed that they had captured the event but did not say what the event was!

All I can confirm is that the lady monitoring the ECG was a senior echo cardiographer in the heart and lung centre, and she said that she expected me to pass out way before the time that I had begged to be lowered. Also she said that the cardiologist would be reviewing the results that same day or on Monday (today), and would contact me regarding the results, I informed her that I had an appointment in December with the cardiologist and wouldn’t I have to wait until then for the results, to which she said oh no…. he would look at the results and would be contacting me early this week…..

So I have to wait…..

Can I ask another very important question…. do people who have PoTS have abnormal events recorded on ECG’s during the TTT?

Kind regards

Heather UK

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