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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Jordan's MRI

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Jordan's MRI › Reply To: Jordan's MRI

December 5, 2013 at 8:45 pm #4648
Dr. Diana
Keymaster

Boy, does that bring back memories! My pituitary was much flatter than this, and I had much more fluid in the subarachnoid space, giving the doctor pause. The he decided that it was “probably normal”. Personally, I think all doctors need to look at images in coordination with signs and symptoms, right? I remember mentioning to the doctor that although this occurred in 6% of normals, perhaps I shouldn’t be considered ‘normal’ if I had every symptom of increased pressure in conjunction with this presentation? 😉 No one here can tell you what to do, of course, but I did want to mention something for everyone — especially for someone in such a delicate position as Jordan! Diamox can be diagnostic in these situations (as it was for my kids and I). If CO2 levels are 22 or above, taking an evening dose of Diamox may be all that is needed to tell if high pressure is part of the problem. One patient began to get a little bit of relief in AN HOUR! I gave it overnight. Bingo! I remember waking up without that horrible pressure for the first time in a couple of years. Even better, my son came BOUNDING down the stairs after his first night, yelling, “It worked! It worked!” 😉 So, Jordan’s doctor may want to consider trying it for a day or two — a ‘trial’, so to speak — it may be diagnostic in and of itself. Again, if Jordan is too acidic, it won’t work, so please be sure CO2 levels are OK first, though. Many of us go into ‘remission’ after a period of time, and frankly, brains shunts are not something most of us want to jump to unless all other alternatives have been considered first. So many sad stories there… Will you keep us posted? Big hug…

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