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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Discharged from the Hospital( Needing Advice)

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Discharged from the Hospital( Needing Advice) › Reply To: Discharged from the Hospital( Needing Advice)

January 23, 2015 at 12:54 pm #5256
jlreed
Participant

Dr. Diana,

He actually yelled at me. It was quite shocking, I had to ask him to leave the room until he could calm down and talk to me with respect. He came back with my prior notes and said that if I was still symptomatic on the therapeutic dose of topamax he would put me back on diamox. He also is referring me for automatic dysfunction testing. He really didn’t want to do this, but since the only thing he was willing to diagnosis me with was a headache. I can’t seem to get the doctors to focus on anything other than the headache. They disregard all of the other symptoms. I am trying to think of a tactful way to email my neurologist your book now and ask him to please read it and be open that EDS does have something to do with all of this. Sorry for sounding like a soapbox, but so very thankful for this.

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