Dr. Diana,
He actually yelled at me. It was quite shocking, I had to ask him to leave the room until he could calm down and talk to me with respect. He came back with my prior notes and said that if I was still symptomatic on the therapeutic dose of topamax he would put me back on diamox. He also is referring me for automatic dysfunction testing. He really didn’t want to do this, but since the only thing he was willing to diagnosis me with was a headache. I can’t seem to get the doctors to focus on anything other than the headache. They disregard all of the other symptoms. I am trying to think of a tactful way to email my neurologist your book now and ask him to please read it and be open that EDS does have something to do with all of this. Sorry for sounding like a soapbox, but so very thankful for this.