I have classical EDS, not hypermobile. I do have hypermobility in my digits elbows and knees. I can do some pretty weird things with my toes. But it sounds like you are much more hypermobile. I also have severe arthritis in my spine. Make sure your geneticist will diagnose based on presentation. I actually do not have the genes involved, but based on physical examination, I was diagnosed by the geneticist with classical EDS. There are genes involved that they are unaware of, so geneticists can diagnose on presentation alone.