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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: TILT TABLE RESULTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › TILT TABLE RESULTS › Reply To: TILT TABLE RESULTS

October 29, 2013 at 8:04 pm #4555
Stayingstrong
Participant

I am new to group and was diagnosed Chiari 1 in 2006, cci 2008(eds classical in 2008) but my spouse “poo poo”ed on the eds and cci diagnosis. Have had the dizzy, chronic pain, fatigue , etc. seen all the PCP, cardio. ent, Neuro, Neurosurgeon, etc Have not worked since 2008 due to my symptoms. Just found Mayo clinic and had to force my cardio to refer me to them for the autonomic testing. My previous doctors all awful. never would refer me when I asked for a Vit D test, they said NO. and now this cardio said NO. I had to threaten to call the medical board! Anyway, saw the Neuro, he did the ttt, only had me upright for 10 min , it did not trigger my symptoms. but did trigger erratic bp. He diagnosed me with Orthostatic intolerance. I also, have mine trigged when I go up my 16 stairs of my house, it will ususally trigger my heartbeat to 180 . I told the Neuro at Mayo this. He started me on 2l water day, salt 6g day, elevate head of bed, compress stocking, exercise daily, it is helping some, I can feel the difference. I have gotten my Vit D up from 11 to 30 now. Now the doctor wants to do a CATECHOLAMINE BLOOD DRAW TEST. What is the point of this? is it costly? It says will take an hour and a half. drawing blood at 30 min and then after 10 min of standing?

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