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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Reverse POTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Reverse POTS › Reply To: Reverse POTS

July 23, 2013 at 8:52 pm #3945
Dr. Diana
Keymaster

Thanks for your reply.

Yes I had very severe Gastroparesis/constipation issues and the most excruciation pain I’ve been in during those attacks (felt like my insides were ripping apart).
PS: Why can’t I PM you? I have important (not to mention private) things to say. You are so hard to get hold of.

Hi PhoenixDown and other who suffer from that horrible gastroparesis/constipation/delayed gastric emptying! I am working on setting up the treatment trials now. It may be 3-4 months before they begin, but I wanted to give you some hope!This stuff works (I had to run a mini-trial in order to get the patent), so please stay tuned. 😉 As far as PM’ing me, I am SO swamped as it is, and none of us are easy cases, right? I have an advocacy arrangement for personal consults (see the front page of the forum), and I’ve done a couple of those.;) Don’t hesitate to utilize that if you need guaranteed one-on-one, OK? Otherwise, the point of the forum is for us to share our commonalities and learn from each other. (Not to mention I wouldn’t have time to move us all forward with the research if I provided consults all of the time — that would work against what we need, right?). I will continue to answer as many questions as I can, as often as I can, but please keep in mind that I am able to find answers because I have the same symptoms and struggles you do! And with my kids affected, you KNOW we spend a fair amount of time trying to duct-tape everyone together as I work through this! Thanks for understanding…:)

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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