Hi Amy,
I think we are a creative bunch and let’s face it, this condition does stir the emotions somewhat and certainly drives the passion, both are catalysts for creativity. I watched some of your video’s too, it’s good to document what we’re going through. I think we should all do it and expose this horror of a condition, for what it is.
Watching your singing video prompts a question, as you can still obviously sing very well. I have lost my singing voice, much to my despair as I loved to sing along to Barbra Streisand. I can still sing in a fashion but don’t necessarily hit the right notes (although I don’t know I’m not going to hit them!), Sometimes I sing 2 notes at once (weird), I also run out of breath all the time! I wonder how many others any of this has happened to ?
Regards
Barbara
(UK)