Dr. D – Sorry for the 2000 questions! So I looked again and can’t find where to do the blood work registry. Please help! 🙂
I watched the video I believe you were referring to and the picture is coming together even more clearly for me. So people like us with either EH or PTC most likely have lateral rectus palsy, which is also called VIth nerve palsy and is truly affecting our muscles? I too have and have almost always had double vision when looking to the sides too far. It actually hurts me to do it and makes me nauseous so I just don’t do it. The breaking fusion issue and seeing things move away explains so much for me. The inability to focus when looking forward is still esophoria, but caused by VIth nerve palsy or lateral rectus palsy then? I will go over again tomorrow BEFORE the melatonin and restless leg meds and I’m sure it will be obvious. 🙂
I’m excited because I think I can have my doctor refer me to an interventional radiologist to look for CCSVI and I found a good one here in Ohio so that’s on my to-do list. Now I just need to get on the ball again about tracking down a mast cell specialist. It sounds so simple, doesn’t it? 😉 Thank you!!