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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Neuropathy

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Neuropathy › Reply To: Neuropathy

August 13, 2012 at 4:19 pm #2743
Give My Daughter the Shot!
Participant

Hi Ang.

I, too, have neuropathy. It can be pretty awful. I am not sure that I experience it identically, but, I definitely have creepy crawling sensation at times. I had been told once by a chiropractor that pain doesn’t always ‘register’ as the traditional OUCH sensation. While I don’t necessarily classify this gross feeling as pain, I sometimes think of it as a sensation that remains nameless. I feel that I have actual pain sensations that would fall outside of the normal verbage for pain too. Like, pain with no name. Intense feelings of grossness that I cannot connect descriptive words to.

That ‘rotting’ type of sensation is so frustrating to me. It makes me think that my time might be best spent orchestrating a thorough and proper autopsy versus trying to explain what is wrong with me to a doctor. I am POSITIVE that there is quite a lot wrong with my ‘insides’ but cannot prove it (at least not nearly to the extent that I am certain it exists) and describing it has proven a huge challenge. Plus, it seems to be ever-changing – or more layering of the next dreaded ‘issue’ that commands my attention over the last ‘issue’. It never goes away but is overtaken, only to re-erupt with a vengeance again. Vicious cycle.

I know I experience absolutely dreadful sensations that have yet to be defined by descriptive words. Generally, in the familiar ‘physically battering layers’ that I experience daily with regards to pain, exhaustion, nausea, etc etc etc.

We support you and pray for you.

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