I, too, have neuropathy. It can be pretty awful. I am not sure that I experience it identically, but, I definitely have creepy crawling sensation at times. I had been told once by a chiropractor that pain doesn’t always ‘register’ as the traditional OUCH sensation. While I don’t necessarily classify this gross feeling as pain, I sometimes think of it as a sensation that remains nameless. I feel that I have actual pain sensations that would fall outside of the normal verbage for pain too. Like, pain with no name. Intense feelings of grossness that I cannot connect descriptive words to.
That ‘rotting’ type of sensation is so frustrating to me. It makes me think that my time might be best spent orchestrating a thorough and proper autopsy versus trying to explain what is wrong with me to a doctor. I am POSITIVE that there is quite a lot wrong with my ‘insides’ but cannot prove it (at least not nearly to the extent that I am certain it exists) and describing it has proven a huge challenge. Plus, it seems to be ever-changing – or more layering of the next dreaded ‘issue’ that commands my attention over the last ‘issue’. It never goes away but is overtaken, only to re-erupt with a vengeance again. Vicious cycle.
I know I experience absolutely dreadful sensations that have yet to be defined by descriptive words. Generally, in the familiar ‘physically battering layers’ that I experience daily with regards to pain, exhaustion, nausea, etc etc etc.
We support you and pray for you.