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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Resting Heart Rate , when considering POTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Resting Heart Rate , when considering POTS › Reply To: Resting Heart Rate , when considering POTS

August 13, 2012 at 7:27 pm #2745
Barbara
Participant

Hi Give My Daughter the Shot!,
Never feel black-balled about posting your thoughts and experiences. Many times I read a post and either don’t have the energy (or have too much other work to do!) to respond, it doesn’t mean I wouldn’t like to respond, it’s just my condition and circumstances that let me down.

I think it is important that all symptoms are exposed and yes, many of them are weird! People will ‘search the internet’ for their symptoms for years to come and read these posts and it does help to find you are not alone.

With regard to some other points raised on this particular forum topic:
Fluid from the nose – yes it may be an allergy, my father is allergic to house dust and this causes him to have Rhinitis, just water fluid coming from the nose. Dr Diana was particularly curious to know if clear fluid happened to come from the nose when people leaned forwards, like her experience was. This fluid she suspected, in this case, was likely to be CSF leaking.

Chest Pain – I had chest tightening many times a day and I found that my diastolic reading (the lower one) was above 90 when this happened, and you could guarantee that the discomfort was worse if my diastolic was 95 or above. I would be curious to find whether you notice this ScaredSingle . . , I think it has some significance. The Pulse Pressure, which is the difference between the two BP figures (i.e. Systolic – Diastolic) is an important feature too, let me know what that is when you are having the chest discomfort/pain please.
Regards
Barbara
(UK)
—————————————————————————————————————-
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!

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