NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › External Commuicating Hydrocephalus –video is up! › Reply To: External Commuicating Hydrocephalus –video is up!
I hate it when I prematurely click submit!
I just wanted to say thank you and thank God for you, Dr. D. You do so much to help others and it’s so appreciated!
Thank you! As to your questions — you are a PERFECT person to join in our blood work registry! Please tell me you will! I believe I’ve figured out the link between POTS, metabolic syndrome, pseudo-tumor cerebri and external communicating hydrocephalus, and I think this test will show it, and give us a treatment option. I have a (newly acquired) “frozen shoulder” — the doctor said it is related to metabolic syndrome. Oh, REALLY?! I was just pulling all of this together, and that just compounded the evidence for me.
I’m SO glad you were able to tolerate Diamox! That should offer some support for the doctors who shudder because of sulpha allergies. I work with two doctors who are careful (scratch tests, hospital administration, etc), but whose patients rarely react. Good to hear!
Esophoria or esotropia does NOT occur with age! Heavens. Betcha’ $5 the Diamox will reduce, if not eliminate it. 🙂 Let us know? If you missed it, I chat a bit about my experience with lateral rectus palsy, too in my CCSVI interview. Take a peek? One patient started Diamox, and had episodes of fusion for the first time in years, and she was up to 17 prism diopters (that’s a LOT). So I wouldn’t worry too much about that.
Would you mind putting your doctor’s info on our “good docs” thread? That could be so helpful.
Thanks again, my friend. You made my day.