Finally got in with the endocrinologist last week and the small amount of lab work they could perform has been read. They have found that my thyroid dysfunction is autoimmune after performing a TPO antibody level. In 4 weeks they will test my pituitary further and look for antibodies there as well. I have been on pituitary supplements for 3 years so I have to get all that stuff out of my system before they can check levels. They could verify that my pituitary is still functioning via those tests which does seem to indicate autoimmune rather than tumor. At some point I will get a few of my MRI pictures posted in case anyone else finds themselves in this situation. It’s very hard to on a standard MRI, but the pituitary MRIs make it very clear.
Mast cell specialist says I do not have mast cell disorder because I do not experience Anaphylaxis, but do have severe environmental allergies. He will have me starting allergy shots next week. He also says I do not have EDS because I’m not freakishly hypermobile and I’m not tall and lanky. Important to note here that he studied marfan syndrome, not EDS. It’s very obvious to myself and my orthopedic/pain doc that I am at the least hypermobile type. With the older women in my family experiencing heart and colon issues… maybe a worse variety. I am short and chunky as are they. We range from 4’11 to 5’3.