What I don’t understand is, why this condition, which effects just about every system in the body, has not warranted extensive study before now. Why aren’t drug companies and governments throwing resouces at this terrible disease. Of the studies that have been done, why does no-one take them seriously? AND why does it have to be, that only those medical people who suffer it themselves, take it seriously. Why are so many of the studies having to be self-funded ? The list goes on. We’ve all been so grossly mistreated, being left to suffer without hope and, seemingly, no course of action we can take that will make any difference.