“Hi qanik, Do you have a copy of The Driscoll Theory? Are you on any mast cell meds? Diamox? I’m pulling together a research paper for publication that will be of great interest to most of us, I think. I will say, if you missed the video about “should I treat my CCSVI”, I would strongly encourage you to wait for the research paper (at a minimum) before treating venous problems (like CCSVI) with angioplasty. I think we can and NEED to do better, and seeing your high ANA’s hints that you don’t want to cause damage to your vascular endothelium. It just gets everything inflammatory all stirred up sometimes. I hate to talk so indirectly (but must, prior to publication). Again, I got out The Driscoll Theory as soon as I figured out some of this, but will need to wrap up trials for our next step (COMING SOON). Oh, if you want/can share any images from your MRV, that would be tremendous. Hang in, Diana
I do not have a copy of the book. I looked at the store on here and nothing there then went to Amazon and only one copy ay $999.00! I head for my MRV in 2 weeks and will post results. I have multiple neurologist including the ones from Mayo who are fighting over whether this is all from an autoimmune condition and I should be treated with immunosuppression ( yuck, been there) or its all dysautonomia with all the other fun we experience.