The issues with POTS and Dysautonomia are lacking in care or concern from our experience.
But since being diagnosed with Mito, our daughters newer specialists “get” POTS and Dysautonomia. Even the nephrologist recognizes how horribly it can affect overall health and body systems and quality of life.
Why they aren’t researching it further is beyond me.
Interesting enough, back a few months ago when we eliminated all and I mean all of the corn including hidden, Abby stopped having POTS issues. At the same time we started using Pink Himalayan salt.
I have found for my POTS episodes if I soak in epsom salts the magnesium helps balance me. Also I take magnesium tabs which seem to help but can cause your GI to process quickly! Which is good if you are constipated…. 🙂
Hope you guys find some relief.. right now they think Abby’s edema issues and possibly her pancreas issues are dysautonomia in nature- or at least it is a contributing factor. We will see.
I think had Abby had a diagnosis of POTS before the Mito diagnosis, she would not have received the level of concern she has over it, but at the same time, it has begun to get convenient for her specialists to blame dysauotonomia with new symptoms before investigating…
Diane