Heavens, Eliza, Jordan needs real face-to-face medical care. This is not something anyone, including myself, should try to diagnose and/or treat over the Internet. It sounds like Jordan has an orthopedic doctor? Then surely, he must have other doctors? Yes, weight gain is important, but ruling out causes of malabsorption are equally important – celiac disease, IBS, candida etc. Neck braces: it really is trial and error as everyone is so different. I’ve probably gone through a dozen myself. Diamox is not something to take lightly, and we need to show a reason for it. It doesn’t sound like he has been evaluated for symptoms and/or signs of intracranial hypertension? That would be needed first. As far as mast cell treatment goes, if he is showing signs and symptoms of that condition many of us get relief from antihistamines, such as Zantac and Zyrtec. We found that to be especially helpful in orthostatic intolerance. I’m not certain if he suffers from that condition, however. Should he respond positively to antihistamines, then the next step would be another mast cell stabilizer such as cromolyn or ketotifen. The oral form (tablets) are best. This is by prescription. I’m so sorry his family doesn’t understand, and is so neglectful. He is lucky to have you in his life. Keep being strong, gentle hugs…