Jordan is on Skype right now, so I can do some QA with him.
We’ve had neurosurgeons excitedly suggest shunts. His MRI is posted somewhere in the forums. His headaches are bad, but he isn’t seizing as bad as he used to (back in Sept-Oct2013). Most of his problems are typically on the right side, especially his arms, but it is not uncommon for his left side to be shaking as well. The shaking is not very severe now. The ophthalmologist he saw found no sign of intracranial pressure, though his MRI seems to indicate otherwise. When he has a flare up, he gets white flashes, and the white flashes increase in frequency when he takes tramadol.
His blood pressure is all over the place (on the low side as usual). We aren’t sure if the zyrtec/zantac combo was helping or if it was his change in diet that helped. Right now, the zyrtec/zantac is not as effective as it had once been. His body temperature is a little on the low side, and has yet to reach 98.6 (it’s usually lower).
He completely forgets what he is talking about in the middle of conversations, very bad ADHD, can’t think clearly, and his thoughts are racing all the time. (adrenaline)
His beta-blocker (propranalol) helps with his high heart-rate. He always has a high heart rate, but when it gets to the extremes, propranalol helps.
His nausea has been really bad recently, likely the combination of his celiac, IBS, adrenaline-dysautonomia (gastroparesis really), cervical instability, and the medication (vicodin and tramadol)
Jordan will update me as to what goes on in his flare ups nowadays.
He’s had a nasty day. His folks essentially told him that they will stop taking care of him today.