Barbara and MJ thanks for the replies. Its actually a small bit comforting to know you are not alone and crazy in this quagmire of symptoms when you hear others who have the same issues. It has been such a rough 6 months since I got pneumonia it just seemed to intensify all my symptoms and I havent recovered yet.
Mj I dont now what it cost at Mayo as my insurance covered all but $5,000 over the 3 visits. They were very good about letting me set up a payment plan to pay that off. I will take some time to pull my records and give you an estimate of the test and charges. I will tell you this. I had heart rate and blood pressure issues for many years and walked around with a heart rate of 140 for what seemed to be years until my primary doc said enough and started me on the beta blacker which did control my heart rate for the most part. That being said the beta blocker seemed to really increase alot of my other sysmptoms. Well the first time i went to Mayo my sweat test and QSART were all positive but my tilt table was negative as my heart rate didnt increase enough (over 30bpm) and I kept saying shouldnt I come off my beta blocker and i was seeing a general neurologist and he said no. Then the last time I went to see the autonomic guys and they stated absolutely you need to be off the beat blocker and off long enough so i wasnt having a beta blocker withdrawel response. So after weeks of being off the beta blocker and having a high heart rate ( and having more energy then I have had in years) I went and had the test and the techs were like ” oh my” as I went from 88 lying to 158 on tilt. Thanks again for you responses.