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Dr. D –
I’m excited because I think I can have my doctor refer me to an interventional radiologist to look for CCSVI and I found a good one here in Ohio so that’s on my to-do list. Now I just need to get on the ball again about tracking down a mast cell specialist. It sounds so simple, doesn’t it? 😉 Thank you!!
Hon, you may want to hold off on TREATING the CCSVI (looking for it is good, though). You’ll want the results from the registry first (take my work on this, K? Details coming!)
Ok, now we’ll see how long the calming effects last. Way cool on the blood registry! You put me down as interested, tapping her foot and chomping at the bit to race off to the nearest lab whenever you say the word! Genius idea, I tell ya and I’m just glad you’re on our side. Well, not glad you too have this, but you know what I mean.
Cool on the pH issues and Diamox too. I always have docs tell me I’m very acidic and I always wondered why my CO2 is always low. I just got on MyChart because I’ve had every lab known to mankind drawn 2 months ago and I knew my CO2 was slightly low (it’s usually lower) at 20 (21-31) and my K+ was 4.4 (3.5-5.1), but I hadn’t started taking the Diamox yet. This is just fascinating stuff and you have an answer for everything. Amazing!! I Ok, so I will add these labs to my list of things to have my darling PCP check. I’ll investigate the baking soda capsules and alkaline water.
I’m intrigued by the cryptic message on mast cells! I’ll ask darling PCP to put me on Cromolyn Sodium as well and will wait rather impatiently for more info. Sounds very good!!
I need PCP to order the right test (fMRI, yes?) or refer me to an interventional radiologist still for the CCSVI diagnosis? Of course I trust you on all this! You’re the drum major of this offbeat, disjointed (heh), ragtag, band of misfits so you lead, I’ll follow. -Jodi