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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: doing anything with your arms above your head

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › doing anything with your arms above your head › Reply To: doing anything with your arms above your head

June 5, 2012 at 3:30 pm #2345
Danielle
Participant

Last night I had my husband (an RN) do the poor man’s tilt-table with me. I rested for 10 min and by heart rate was around 72-74. Then I stood up. I only made it to 9 minutes standing very still before I was having trouble catching my breath and my chest hurt, then I felt like passing out, so I quickly got back in bed. My husband said I had hit 104 beats per minute. I never thought I had lightheadedness, but realized I usually compensate by moving around. Also, I do get dizzy when I squat down and stand up. Maybe POTS does fit my symptoms. I have a dr. appt this week to explore more.

As for the runny nose, I take nothing. I try not to take meds if I can help it (and especially now as I’m expecting). I do have a prescription for Flonase from a previous doctor.

Can you tell me more about plasma catecholamines? What would those numbers tell me?

As for other symptoms, I haven’t noticed an increase in urination, but I am a bit more irritable especially with repetitive noises or movements. Lack of motivation comes with this along with feeling full high in my stomach and hungry at the same time. I have another type of crash that doesn’t have full body fatigue, (so not usually related to moving my arms above my head) but instead a bad headache with nausea, light sensitivity, noise sensitivity and neck pain. I always have low level neck pain, but with these episodes, I feel more tender. I often have to throw up (can’t be induced) before the pressure will subside and my symptoms release.
I don’t know very much about episodes of mast cell degranulation? But I do have sensitivities to perfumes, lotions, cleaning supplies, candles and dust, which would be increases when I’m already “down.”
Thank you so much for walking this journey with me. I look forward to more suggestions!

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