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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: doing anything with your arms above your head

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › doing anything with your arms above your head › Reply To: doing anything with your arms above your head

May 31, 2012 at 4:26 pm #2270
jillMEnz
Participant

Ourfullhouse – I suspect I have POTs. My diagnosis up til now has been ME/CFS. THere is no-one – cardiologist – here in NZ who gives a rats about POTs. I saw Peter Rowe from JHU at an ME conference and he diagnosed me as EDS in the corridor of the conference! I’v now found out we have a genetistist in Auckland who is interested in EDS – so hv an appointment in 6 mths. They say they can’t do the testing – but can go off clinical signs. I know I have it, but this way hopefully I’ll get int to the system for ongoing monitoring

Palamenomorgan – thank you for the suggestion – I will need to look that up further. So far I don’t think I have that – but who knows. I’v just passed the info on to a friend who is disabled by something that sounds like TOS – so thank you indeed.

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