Ourfullhouse – I suspect I have POTs. My diagnosis up til now has been ME/CFS. THere is no-one – cardiologist – here in NZ who gives a rats about POTs. I saw Peter Rowe from JHU at an ME conference and he diagnosed me as EDS in the corridor of the conference! I’v now found out we have a genetistist in Auckland who is interested in EDS – so hv an appointment in 6 mths. They say they can’t do the testing – but can go off clinical signs. I know I have it, but this way hopefully I’ll get int to the system for ongoing monitoring
Palamenomorgan – thank you for the suggestion – I will need to look that up further. So far I don’t think I have that – but who knows. I’v just passed the info on to a friend who is disabled by something that sounds like TOS – so thank you indeed.