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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Thinning of Retina, EDS, and more pigmentation iris-POss TIa or Occular migraine

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Thinning of Retina, EDS, and more pigmentation iris-POss TIa or Occular migraine › Reply To: Thinning of Retina, EDS, and more pigmentation iris-POss TIa or Occular migraine

July 31, 2011 at 10:14 pm #1366
mother1991
Participant

No eye drops or anything for eyelash growth. The brown pigmentation seems new. I asked my parents and family and friends that have known me my whole life and none had seen this before. Also it is visible by naked eye. I will definately keep you posted. About 3 months ago I did have a leukemia lymphoma panel done because of still unexplained swelling of right arm with rash. It was negative. I seem to be one of those patients where some things have been found out that was once unexplained to others still no known idea. I also present in ways that do not always seem the norm. I expect may never know the answer to everything but am still vigilent in my learning process along the way.

Maybe you could ask your collegues if they know anyone at UCLA. Any lead is worth is worth investigationg.

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