Do any of you take Midodrine? I wonder if it helps CCSVI? Or is it different just helping blood pressure and constriction of the vessels? Just wondered.
Hi Tracey, I know we’ve “talked”, but I thought I’d share the love here… Midodrine helps many POTS patients because it causes constriction of vessels (and thus higher blood pressure. Since I have hyperadrenergic POTS, I was a total mess on it — most of my symptoms were worse. Since my BP was high when vertical, I knew it wasn’t good to raise my BP too much, too. In CCSVI, the veins (not arteries) in the neck and sometimes the upper chest are malformed or stenosed (as in varicose veins). They don’t drain blood well from the head, and sometimes we regurgitate blood back into the head. Eww. Midodrine should have little or no effect on CCSVI. (We don’t want to make it too easy! ha). 🙂