NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Chiari? › Reply To: Chiari?
Bilateral TOS, tethered cord for sure, and probably craniocervical/atlantoaxial instability if “expert” will take time to look at films he ordered. Though my head may not have rotated enough to show the instability per radiology report as interpreted by expert NSG. I have “low lying cerebellum tonsils” that are out of foremen magnum by 11 mm on supine and not as much upright but are making a really good cork and blocking CSF flow. Doesn’t have to be a big herniation or any at all to affect CSF flow.
Finding a good doctor for each situation is pretty damn hard. It’s like untangling a 5 mile spool of mangled razor wire. Nobody wants to do it even if you find 1 or 2 who COULD.