NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Hypermobility but not EDS, other fishy things and referral merri-go-round › Reply To: Hypermobility but not EDS, other fishy things and referral merri-go-round
I feel burned out and am afraid to advocate for myself any more because I don’t want to be seen as a mental case. But I’m really exhausted.
Hi Stray Tulip,
Mog the Dog here. You may not be able to get the answers you seek from the new doctor, but you can begin to feel more empowered to advocate for yourself. It’s a daunting journey, but there are paths through it that are much less thorny and scary than the ones on which we sometimes find ourselves wandering and lost.
As far as the fear of being labeled a mental case goes, if a doctor wants to label your symptoms “psychogenic”, do a 180 and head for the door because you have found yourself on a dead-end path. No need to get angry at such docs and try to convince them they’re wrong. Just do the 180 and head for the door.
A good doctor is a curious doctor who finds unfamiliar conditions intriguing rather than burdensome. You might have to travel to find one. They are out there. I have met too many to count.
Sometimes just knowing that others are on a similar journey is enough to help us in the face of burnout and fear. I found that reclaiming my natural sense of curiosity helps snap me out of burnout mode. Try checking out a youtube video on the latest research in Ehlers Danlos Syndrome and watch passionate doctors being passionately curious about finding answers for us. No guarantees, but about 30 minutes usually improves my mood. Try it and see if you agree…