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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: New cardiologist and no more test…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › New cardiologist and no more test… › Reply To: New cardiologist and no more test…

September 13, 2013 at 9:15 am #4343
Barbara
Participant

Hi Vincent,
No you are not crazy but it seems to be a crazy world we are in, that treats us this way! Have you been to see a neuro-opthalmologist yet ? I had a lot of eye pain, like pressure from behind, especially on a morning.

Dr Diana used to have an A4 sized poster you could download from this site and take to your eye specialist, showing the subtle signs to look for. I cannot seem to find it, maybe someone could help me out with this ?

Anyway, if you get your eyes checked, to look for subtle signs of raised intracranial pressure, maybe you could get some Diamox (Acetazolamide) prescribed, this will hopefully reduce, or totally relieve the eye pain. It should also help with some of your other symptoms because you really need to get the intracranial pressure down, which is affecting a whole range of things.

In the meantime, get a good multi-vitamin, one containing as much magnesium as possible and make sure you take it every day, without fail (if you are not doing this already) it’s important. Make sure you open windows daily too, to get as much oxygen in as posssible. I know a lot of house-bound people tend to forget this but it is very important.

I hope these things bring you some improvement until you can get some proper treatment, until then I wish you ‘All the Best’,
Regards
Barbara
(UK)

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