• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Hi again! I have an update, and some questions.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Hi again! I have an update, and some questions. › Reply To: Hi again! I have an update, and some questions.

July 16, 2015 at 11:02 am #5574
Dr. Diana
Keymaster

This is SUCH an interesting question! Yes, many of our signs and symptoms can appear as lupus. Some of us develop autoimmune conditions down the road, and lupus is one I’ve seen (I also see rheumatoid arthritis, dermatomyositis, multiple sclerosis and others). I’m glad that your doctors are looking into it and should you have markers that indicate lupus, they can address these. These autoimmune conditions can cause or exacerbate POTS, and it’s important to know if you fall into this boat. HOWEVER, our condition can also mimic many autoimmune conditions — and this is where it gets tricky. Treatment for problems that mimic autoimmune conditions, but are not truly autoimmune, are different. I’ve seen some doctors even resort to treating us as autoimmune (because it’s the only thing that seems to fit, despite negative lab work). If given a diagnosis of a “presumed autoimmune condition”, I hope you and your doctors always keep their minds open to the possibility that it MAY be something else — they just haven’t figured out what that something else is yet. Please keep us posted — so many of us are in your position. Thank you for posting such a great question! 😉

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020