• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Hi again! I have an update, and some questions.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Hi again! I have an update, and some questions. › Reply To: Hi again! I have an update, and some questions.

July 27, 2015 at 10:17 pm #5577
Mog the Dog
Participant

Hi SaraC,

I have been tested for lupus so many times over the years that I could have qualified for a patient role on House M.D. (For those who never watched the show, they had a running joke that “it’s never lupus”.)

And, no, I don’t have lupus either. The rheumatologist who screened me for lupus the first time back in 1990 was the one who diagnosed me with Ehlers Danlos Syndrome, hypermobility type (8 out of 9 on the Beighton scale).

I understand your squeamishness about seeing a physical therapist. I finally took the plunge this past month after almost 40 years of symptoms, and I am so glad I did! I traveled over 1,200 miles to see Jerry Hesch in Aurora, Co. He is outstanding and well-versed in both hypomobility and hypermobility issues. Do a Google search on him and see if he may be of benefit to you (he has lots of educational youtube videos to watch even if you don’t go to see him).

I have absolutely less than no interest in ever seeing a “big box store” medical specialist ever again for my EDS, narcolepsy-like sleep disorder, or platelet disorder. What a waste of time and money it has been for me. Instead, I do my own research of the medical literature and correspond with researchers and people like Jerry who have a life-long passion for learning and helping people with chronic, complex health problems.

Living with EDS has been both an arduous journey and a curious adventure, and I am glad for the opportunity to have met and shared ideas with so many interesting people over the years. I can only hope for such an intriguing adventure for you in your quest for answers and relief from all the suffering.

MTD

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020